Lily had her hearing therapy today with Cathy who is a deafblind specialist and sees another of our local Charger families. I heard that Christian is back home now and laughing and feeling better!! Yeah "Little Chicken Man"!
Cathy noticed that Lily's left eye was squinted and fluttering. She was having a muscle spasm in her eyelid. I told her that we had seen this before and that her eye doctor didn't make any big deal out of it. Cathy pointed out that her whole face on that side was kind of moving and said we should get with a pediatric neurologist. With Charge I guess it could be cranial nerve issues. I don't what they would do for it. But i do know this issue is becoming much more frequent.
She did make it all day today without a headband over her hearing aid and DID NOT TOUCH IT! Wow! Amazing! Never thought I would see THIS day coming this soon. But tomorrow she could be Little Miss Feisty again...
We are probably up for another nasal endoscopy and most probably tubes in Lily's ears per her Nose ENT. I have to check in with her Ear ENT December 12th. At least the Nose ENT could do both procedures at one time and she would probably just stay overnight at Children's again.
Please keep little Vivian in your thoughts and prayers if you read this as she is having Choanal Atresia Surgery this Wednesday. She looks like Lily's little sister!!
A startling 7,500 children on any given day can be in foster care across
Yorkshire and Humberside. Each year more and more children enter foster
care or re...
10 years ago
2 comments:
Oh, my goodness, I just posted about our (self imposed) Hearing Aid Boot Camp for Miss Viv! I am so excited, Miss Lily-pie, that you are having such great hearing aid days! You rock, sweet girl!
Thank you for the well-wishes, Karen re: Viv's surgery. It's just been postponed due to her cold/cough. I was so looking forward to getting it over with. So I'm kind of bummed. No word on a new date yet.
Keep us posted on Miss Lily's ENT adventures, too, so that we can keep her in our thoughts and prayers (though we think of you all often, anyway! :-)).
Love*h
Yup we had to add a nero doctor also, its amazing how when you think your plate is already full they add more to it, or when you can finally drop one doctor anther gets added on. I hope you can get some answers soon.
Hugs,
Crystal and Eva
Post a Comment