7 hours ago
About Lily
- Karen Rock
- Illinois
- She's our fantastic, sunny daughter who was born April 14, 2007. She is a small but powerful peanut who happens to be genetically diagnosed wtih Charge Syndrome.
Hope
Hope is the thing with feathers
That perches in the soul,
And sings the tune--without the words,
And never stops at all,
And sweetest in the gale is heard;
And sore must be the storm
That could abash the little bird
That kept so many warm.
I've heard it in the chillest land,
And on the strangest sea;
Yet, never, in extremity,
It asked a crumb of me.
Emily Dickinson
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5 comments:
Oh, what a sweet girl! I LOVE that she loves hoodies and sunhats!
Do you think that stems from wearing the helmet? Viv wasn't too fond of hats before her helmet, but it'll be interesting to see how she feels about them after she graduates from helmet wearing.
yum wat a cutie
She is so adorable!!
I noticed you go to Children's hospital of Chicago, where in Illinois do you live? I live near gurnee and is always looking for other CHARGE families to meet. I also noticed you have Jayden's video linked on your blog, I made that video for his family, I even got to meet his mom, dad and brother in June shortly after he passed away.
I can not wait to hear from you.
Hugs,
Crystal and Eva
crystalm1476@hotmail.com
I love this blog!! This is great!! Lily one day will realize how much her family loves her and all that they do for her. Keep me posted on updates of this site. Thanks!!!
Michele Neidlinger (Lily's favorite PT-- yeah,right!)
Karen-
I love this blog! This is really cool, and must be tons of fun doing this. Lily one day will realize what a loving family she has and all that they have done for her. Let me know when you update it...I would love to continue to see it. Thanks!!
Michele Neidlinger (Lily's favorite PT)-- yeah-right!
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